Local and Regional SEND Support Organisations

Online Parenting Courses / Advice and 1:1 Telephone Coaching

Anxiety
The Expert Parent’s Guide to Childhood Anxiety

Bristol Parent Carers
http://www.bristolparentcarers.org.uk/
http://www.bristolparentcarers.org.uk/index.php/contact-us/register (registration form)
Bristol’s parent participation forum, a volunteer-run organisation run by parent carers for parent carers. Offers parent carers the opportunity to feedback their experiences and views, using this input to influence and co-design local statutory service provision. Also offers signposting, engagement opportunities, training and a support group.

Judy Porter, Carers’ Support Centre
Judy, an ex-MacMillan nurse (and, thus, unshockable) is the parent carer support worker for Bristol. She has extensive information about funding organisations, support networks and will offer personalised support over the phone, in person and during home visits. Particularly good for parents in or approaching crisis point. Contact: 0117 9375621 (Mon, Tues, Weds), judyp@carerssupportcentre.org.uk

Caudwell Kids
http://www.caudwellchildren.com/
A national charity offering families with disabled children a wide range of support including crisis intervention, equipment and therapy funding, and much more. Particularly useful for families who may be approaching (or recovering from) loss, difficult diagnosis, parental break-up or hospital stays.

Cerebra
http://w3.cerebra.org.uk/
A national charity offering families of children with “neurological conditions” (a deliberately vague, catch-all term) a huge range of service from bespoke equipment to training, workshops, information, a sleep service, sensory training and equipment, one-to-one support, home visits and much more. It’s actually very hard to sum up in a paragraph what they do – essential to the lives of many families.
Bristol Autism Independence
http://www.autism-independence.org/
A parent-led, Bristol-based community aiming to support and inform families of children with ASD. They will contact and try to support Somali families with other conditions, but autism is the group’s shared experience.
Supportive Parents
http://www.supportiveparents.org.uk/
Part of the SENDIAS (Special Educational Needs and Disabilities Independent Advice and Support) network, Supportive Parents have been helping families (and schools) with education, advice and support. Parents must self-refer, but can access support via a helpline, email and in person by appointment. Can advise on accessing the EHCP process.

 

Contact-a-Family
http://www.cafamily.org.uk/
A national support and campaigning charity with a very strong presence in Bristol. Offers families a large array of services including information and training days, benefits support (via telephone) and a number of other information and support information. Also has a huge range of e-learning tools, possibly useful for staff as well as parents.

 

KIDS
www.kids.org.uk
KIDS is an organisation which supports families currently in the EHCP / transfer process. They can offer very hands-on support, including paperwork review and meeting attendance. They also offer home visits and telephone advice.
Contact: Helpline 0117 9476111, IS.southwest@kids.org.uk

The Dyspraxia Foundation www.dyspraxiafoundation.org.uk

Centre for Studies on Inclusive Education www.csie.org.uk